loss of a child, MPS/Sanfilippo Syndrome 1/14/13 loss of a child, MPS/Sanfilippo Syndrome 1/14/13

The Barnett family

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Family, MPS/Sanfilippo Syndrome, special needs, The Village 12/4/12 Family, MPS/Sanfilippo Syndrome, special needs, The Village 12/4/12

June 2012...recap

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Family, MPS/Sanfilippo Syndrome 11/12/12 Family, MPS/Sanfilippo Syndrome 11/12/12

May Updates....in November

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Inspiration, MPS/Sanfilippo Syndrome, plan B, special needs, The Village, trusting God 10/4/12 Inspiration, MPS/Sanfilippo Syndrome, plan B, special needs, The Village, trusting God 10/4/12

Buil"t" with the Boyces and the next chapter...

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Family, Inspiration, MPS/Sanfilippo Syndrome, The Village 5/29/12 Family, Inspiration, MPS/Sanfilippo Syndrome, The Village 5/29/12

Mar 14, 2012: Dig Purple

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Family, MPS/Sanfilippo Syndrome 5/29/12 Family, MPS/Sanfilippo Syndrome 5/29/12

Mar 8, 2012: Purple hair

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Family, MPS/Sanfilippo Syndrome, special needs 4/25/12 Family, MPS/Sanfilippo Syndrome, special needs 4/25/12

Feb 14, 2012 Dr Burton visit

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Family, guest feature, MPS/Sanfilippo Syndrome, special needs, The Village, Women 2/19/12 Family, guest feature, MPS/Sanfilippo Syndrome, special needs, The Village, Women 2/19/12

Through the Eyes of Sanfilippo-a grandmother's perspective

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Inspiration, MPS/Sanfilippo Syndrome, parenting, plan B, special needs, trusting God 11/3/11 Inspiration, MPS/Sanfilippo Syndrome, parenting, plan B, special needs, trusting God 11/3/11

Where I am: 2 years in

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MPS/Sanfilippo Syndrome, special needs, The Village, Women 11/2/11 MPS/Sanfilippo Syndrome, special needs, The Village, Women 11/2/11

Oct 18: Lunch with Kelly in the city

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Build with the Boyces, MPS/Sanfilippo Syndrome, special needs, The Village 11/2/11 Build with the Boyces, MPS/Sanfilippo Syndrome, special needs, The Village 11/2/11

Oct 10: digging the hole and pouring the foundation

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Family, MPS/Sanfilippo Syndrome, special needs 11/2/11 Family, MPS/Sanfilippo Syndrome, special needs 11/2/11

Oct 4: genetics appt

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Build with the Boyces, MPS/Sanfilippo Syndrome, plan B, The Village 10/11/11 Build with the Boyces, MPS/Sanfilippo Syndrome, plan B, The Village 10/11/11

Sept 11: 10 years twin towers and Katie run

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Build with the Boyces, MPS/Sanfilippo Syndrome 10/6/11 Build with the Boyces, MPS/Sanfilippo Syndrome 10/6/11

The Build Has Begun

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Family, MPS/Sanfilippo Syndrome 12/26/09 Family, MPS/Sanfilippo Syndrome 12/26/09

Info and more pics...

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Family, MPS/Sanfilippo Syndrome 12/24/09 Family, MPS/Sanfilippo Syndrome 12/24/09

Disney

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Family, MPS/Sanfilippo Syndrome, plan B, The Village, trusting God 11/16/09 Family, MPS/Sanfilippo Syndrome, plan B, The Village, trusting God 11/16/09

another day...

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MPS/Sanfilippo Syndrome, special needs, talking to kids about ..., The Village 11/11/09 MPS/Sanfilippo Syndrome, special needs, talking to kids about ..., The Village 11/11/09

What do you say?

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Family, Inspiration, MPS/Sanfilippo Syndrome, plan B, special needs, trusting God 10/25/09 Family, Inspiration, MPS/Sanfilippo Syndrome, plan B, special needs, trusting God 10/25/09

some misc. info.

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Family, Inspiration, MPS/Sanfilippo Syndrome, plan B, special needs, trusting God 10/23/09 Family, Inspiration, MPS/Sanfilippo Syndrome, plan B, special needs, trusting God 10/23/09

THE RESULTS

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